Guide I Found No Peace: A Journey Through The Age of Extremes

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My mum helped to resolve the baby crying at night using the crying it out method. It was very hard hearing her cry for hours but after a week she stopped the night waking and just slept, which meant I could sleep finally. I started iron tablets and Levothyroxine at 75mg daily. It took three months for the fog to lift and for me to start feeling more normal. After about nine months, I spoke to the doctor about having another baby. He warned that it might take a long time as my fertility would be affected. Luckily it took a few months and my Levothyroxine dose was increased straightaway to mgs.

I was referred to the endocrinologist at my local hospital and had to have 6 weekly blood tests and meetings with them throughout the pregnancy. My Levothyroxine was increased at about 6 months to mgs. My second baby was much heavier despite being three weeks early. Another blood test confirmed thyroxine too low, anaemia and my kidneys not functioning properly so I was advised to stop expressing and feed the baby formula milk.

Since then my blood was tested every six weeks until it settled at mgs. I managed to lose my 12kgs of baby weight through hard cardio exercise and a restricted diet. It was very hard but I am very glad I am back to my normal weight again. The blood test confirmed this and levothyroxine was increased to mgs. However, the next blood test was too high, so I now have to take mgs and mgs on alternate days to try and get the exact dose I need. I am getting better at spotting when my thyroid level is low or high, now that I have had it for a while.

I do worry about the long term potential complications such as cardiac disease and angina. I smoked for no more than 10 years from late teens. I smoked because I thought it looked cool and I was insecure I gradually became very dependent and at its worst I would smoke between a day. Most of these were in the evening with an alcoholic drink or during the day with a coffee. They were social times. A lot of my friends smoked. I tried to give up many times but there was always a justification why today I needed to have one And then I'd slip back into smoking again.

Then I met someone who would become my husband. He didn't smoke and wouldn't put up with it. I had a choice Cigarettes or them and their health. I finally recognised that I was an 'all or nothing' person I couldn't cut down or have just one. So, the only way to stop was 'cold turkey'.

I had to stop all the associations i. I thought I was going to die in the first week due to caffeine and nicoteen withdrawal symptoms I didn't want to be defined by them I was more than they! In short, I had a buddy to encourage me, a goal, willpower and breaking associations which all helped me to quit. I was fortunate that my TED was very mild and treated quickly with selenium so very non-invasive.

I had two grandmothers who had both smoked and both had hyperthyroidism and one had quite protruding eyes from TED. Neither of my parents smoke and neither had thyroid issues. My sister never smoked and so far doesn't have thyroid issues. I was unaware until I had thyroid problems that my Grandmothers had the same condition. I do wonder - if I had been told by a doctor that, due to my family medical history of auto-immune conditions, smoking would increase my risk of TED even in twenty years time, then I may have never smoked.

For further information see TED and Smoking: Before doctors understood the endocrine system and developed medicines for thyroid disorders I would have died around the age of 46 years. One morning before leaving for my teaching job and later on reflection I counted twenty two tasks that I had done in preparing for the day and preparing my husband and our four children for theirs.

The fact that I never needed many layers of clothes even in winter were signs of something but reasons could always be found for life as it was. Thyroid disorders like lots of other conditions were not heard of as they are today so I never considered having any part of me malfunctioning. I had never heard this about my maternal grandma before. I consulted the doctor within a couple of days who checked my pulse which was 86 and I had a hand tremor. I must mention that my pulse was normally 56 as I had taken up running for fitness when I was 35, I was now The doctor referred me to The Christie which was in my local area.

I was seen two weeks later by a wonderful consultant whose name, unfortunately, I cannot remember, which is strange to me because I can remember every other minute detail of that day - what I was wearing, the consulting room, the scan room etc etc. The consultant arranged a scan so with a short walk to the scanner, a short scan and a vivid print out of my thyroid. It was obvious that it was hyperactive as was I. I walked straight back into the consulting room, no waiting, where Dr. I was given three options: I have always had and still have the utmost respect for the medical profession so I asked for his recommendation.

He favoured the third option and saying he had a quiet day. He phoned ahead and actually walked with me through part of the grounds and part of the hospital taking me to a room where I sat behind a screen, was given a tumbler with a centimetre of clear liquid in it and was instructed to drink every drop with a straw……. I walked out within half a day of walking in.

As I had had no qualms I had travelled alone but on driving home the enormity of what had happened hit me and I broke down in tears when I stopped at traffic lights. A normal reaction perhaps, but with hindsight there was no need for upset. Initially I had two-weekly checks and since I have had six-monthly check ups on my thyroxine levels. These check ups, and having to take medication for the rest my life, ensure that my body, particularly my heart I think! I have led a very active life, raising four children, helping with 10 grandchildren, teaching full time until retirement and being an active, competitive orienteerer since Orienteering has involved competing most weekends at home and abroad, it has kept my mind and body active, brought me in touch with many, many people I would not have met otherwise and it is a sport that I would recommend for young, old, fit or unfit although a certain level of fitness helps and particularly families.

I can say that my thyroid has not affected my life style in any way so maybe I was lucky. I have lost some of my eyebrows, my pubic hair and gained a little weight recently but otherwise there are no signs that I have one of the twelve illnesses that have entitled me to free prescriptions. I do feel that immediate action on discovery of an abnormality and the efficiency of the NHS made my outcomes so positive and enabled me to live a completely normal life.

I realise now that I was grieving for the person that I used to be and coming to terms with the fact that I would have to ask for help just to feel better. Despite having the most supportive and understanding family, no-one knew what I really felt like. I had never felt so alone. I pushed myself to keep looking and behaving normally. I had a family to feed and look after and I was involved in lots of activities. I was miserable, had no interest in my lovely garden or even cleaning the house, let alone anything that I used to enjoy.

I went about my day, going through the motions but not really being there. What I did care about was the fact that my clothes were becoming too tight and despite a good diet I kept on piling on the weight until I was 6kg more than I had always been. I was always cold - my husband and I would have the battle of the thermostat every evening. My nails were weak and flakey and I had agonising cracked heels. I regularly lost patches of hair on my eyebrows. I struggled with accepting my appearance.

I learned to take artificial sweat a bottle of water with me to splash on my arms, shoulders and neck to do the cooling job for me. I just thought all these symptoms were normal for me and never really questioned them or linked them in any way. I was miserable and bad tempered a lot of the time. My cholesterol level had started to rise. Some of my vitamin and mineral levels were rock bottom. Worse still was my hair started thinning - it came out in huge amounts when I combed it.

After having thick glossy hair all my life its condition changed to dry and brittle. I was horrified at the thought of losing my hair. I decided to focus my energies away from feeling sorry for myself and into getting well again. I wanted my life back. I started researching thyroid conditions and was amazed to find that others with an under-active thyroid had the same symptoms. By chance I came across the BTF website and saw that there was a Milton Keynes support group, the nearest to me, living in Northampton.

I telephoned the group organiser Wilma who listened to me. I was overwhelmed with relief and burst into tears. Going along to the support group was a real boost. Firstly, I was delighted to see that none of the ladies at this meeting were bald! Co-incidentally the speaker at that meeting was a trichologist and was there to talk and answer questions about hair loss related to thyroid conditions.

Secondly, I was able to speak to people who had been or were going through the same experiences as me and who were happy to share their stories and successes. During my research I discovered ways in which to work with my GP to enable him to treat me and my symptoms, not just a blood test result. We tailored my treatment to be optimal for me. It has taken time, with gradual increases in my levothyroxine, regularly checking my FT3 and FT4 as well as the TSH levels to find the optimum levels for me to feel well.

He also carried out further tests for other common problems suffered by hypothyroid people such as low iron, low ferritin levels, low B12 and vitamin D, all of which I was deficient in. I was treated for these deficiencies, which helped me feel much better. Getting my iron levels back up slowed my hair loss. The other thing I wanted to find out more about was diet. I decided to see a nutritionist. She gave me information on how to eat well and healthily incorporating all food types. Gradually, my energy and enthusiasm for life has returned, my weight has gone back to normal.

I go to the gym at least twice a week for tough and fun classes. It was almost a eureka moment when I broke a sweat at the gym for the first time ever. I took part in a 12 kilometre, 50 obstacle Iron Run in March with my colleagues. I love speaking to individuals to raise awareness of thyroid conditions and giving sufferers hope that with the right treatment, they can feel better too. Since the start of my treatment with levothyroxine it has been a roller coaster. It was only after my fourth increase of levothyroxine that I found my optimum level that allows me to feel normal.

I make sure I exercise regularly. I make sure I eat well and I take my medication correctly. This is what works for me. I know that I will always have to keep on my toes and be able to recognise when things are not quite right and to deal with them or adjust my treatment if necessary, but now they are all just little things and I can cope.

Alison talks about her experience in a BTF film on hypothyroidism. At five days old I was diagnosed with congenital hypothyroidism which meant that I wasn't growing and developing properly. My parents worried about me everyday as they didn't know what to expect and how to deal with the symptoms I was going to face. I have spent many days in hospital, had over 30 blood tests in my life and have struggled to fight through illnesses that I have faced, but, now I am 16 and I have been through a lot in my short life.

At the age of five, just after my grandma and grandad sadly died, I suddenly got quite ill, I was rushed to the doctors to find that I had shingles. This meant that I had to have more tests and I spent around 2 weeks in hospital as they were worried about my heart.

I had my medication upped and this caused my heart to beat irregularly which meant that I had to spend more time in hospital. Now I am 16 I am able to manage the daily struggle I have with the support of my family and friends, but I do find it hard to tell people how I feel about it and what it is really like to have it.

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The only person I can really relate to is my younger brother who also has hypothyroidism who was diagnosed three years after me when doctors said there was only a small chance that my mum would have anymore children with it we are able to really relate to each other as we are going through the same struggles each day and I think this has made our relationship really strong. I used to find it hard to tell my friends what is wrong with me as I though that they would find it weird and not want to be friends with me.

Both my primary school and high school have been really supportive they even let me have nap time at 12 years old , I have recently finished my GCSE exams and I am looking forward to moving on and living my life, even if it does mean regular check up and more blood tests. I hope that one day people are able to get more support for hypothyroidism and it becomes well known in society.

Having cancer has made me realise how lucky I am. And I don't mean that I am lucky because I got cancer. I mean that I am lucky because I am alive. Not many people will understand this concept and how I can say that I am lucky to be going through this. As crazy as that sounds and as unlucky as I may feel at times and as sad as I can get on my hard days, I need to think, I am alive. I have a purpose just like everyone else in this world. I have goals, and a meaning to life.

Having thyroid cancer does not define me. It has made me realize how blessed I am. I am blessed to have people to help me through this. And people who love me and want the best for me. I am blessed to be able to forge forward and fight. I am blessed to be able to wake up everyday. When I found out that I was able to beat this it really made me think about the people who can't get through cancer and who fight so hard but sadly lose their lives. I wonder how is that fair? I have had so many emotions about this whole experience but I have more emotions about the people that can't be helped.

Going to countless doctors and cancer hospitals made me realise how real this is and how tough those cancer fighters are. When I found out I had cancer, I cried and cried and cried. I cried because this was happening to me, but I also cried because I could get through it.

I cried for the people who could not get through it and who had to lose their lives to this disease. I cried for their families who had to watch their loved one struggle. I cried for my health because I have fought for it multiple times. I cried for my family because no parent should have to see their daughter in pain. I cried for my future because I want to be healthy more than anything. I cried to stay strong, no matter what. We are all put on this earth to have a purpose and to fulfill that purpose. We all want to be happy and live a long and healthy life.

Sometimes things don't workout the way we planned. Sometimes life gets in the way. Sometimes we find out we have cancer. But you know what? Life doesn't stop, and neither should you. People fight everyday and sometimes we really don't know what a person is truly going through. You have no idea what people are thinking and the obstacles they face. So don't be too quick to judge.

Everyone is dealing with a battle of their own. But if you let it consume you then you allow it to win. Accept your struggles and find peace with it. You are lucky that you are alive and that you can fight for another day. Smile at everyone you meet and do not let anything get in the way of you living your life to the fullest. You deserve all of the happiness that this world has to offer.

Looking back I guess I was probably hyperthyroid for many years as I have always been the thin one and still am in a family of large people and was always on the go and not being able to sit still, even as a child. And then in the summer of living in the Essex part of London when I was 47 things really came to a dramatic head.

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I started to feel groggy, faint and light headed and nauseous that increased leading to constant tiredness and fatigue with bouts of hot flushes and night sweats that became a stream of rivulets running down my back. My heart rate increased tachycardia and sleeping became interrupted and uncomfortable. I thought it may have been something viral or diabetes or complications from an old spinal injury that has plagued me over the years. After putting up with these symptoms for a month I saw my GP who ordered a blood test and told me to stop drinking herbal mint tea which apparently has some of the above as side effects.

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The thyroid blood test showed significant raised FT4 levels and the TSH was so low it was at the double minus side of the decimal point. Because of the classic thyrotoxic symptoms I felt like an express train running out of control and not being able to rest resulted in a kind of obsessive compulsive disorder in so much that I became so restless that any incident at home however minor became a big issue, if something dropped on the sofa then even though late at night I had to put the whole sofa cover through the washing machine.

It took a further three months until my endocrine appointment took place and little did I realise that I would be in this for the long haul over the next few years with very frequent appointments at my local hospital which at least to some extent was reassuring to have regular specialist contact. Initially, nuclear medicine thyroid uptake and ultra sound scans took place with a gradual weaning down and off the propranolol. The scans confirmed an over activity of the thyroid gland and for six months my TSH levels on carbimazole ranged from very high 63 to 21 on reducing doses putting me in the hypothyroid zone.

During the summer of I noticed my right eye had become noticeably larger than the left. It had been feeling gritty, itchy and was tearing in the wind.

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I guessed this was the onset of mild thyroid disease but my endocrine consultant said not and put the tearing down to a "hormone imbalance". Not convinced by this I had my GP who was very supportive and let me take control of my condition refer me to Moorfields Eye Hospital in London. The local hospital tried stopping the carbimazole for two months but the thyroid very quickly started speeding up again with its associated symptoms and so a long period of block and replace treatment was started that would last 18 months with regular thyroid testing.

During this period I had a TRab antibody test that is one of the tests that can confirm Graves disease and so my endocrine consultant conceded that I had mild TED of the right eye. The BTF website is the only place I look to for information and the latest news. Even though my TED was unilateral and mild it is important to monitor at an eye hospital and through good practice keep under control. After trying different types I settled on Clinitas sodium hyaluronate which certainly helped with any dry eye issues but I still hated going out when it was cold and breezy as the eyes would drip, drip, drip!

And one does become self conscious about having a change of appearance and always wiping your eyes in public and this can and did lead to some extent to becoming anti-social and not wanting to meet people and hating having a photograph taken. After 18 months of block and replace it was decided that I should stop this treatment and see if the thyroid had either burnt itself out or returned to normal.

For the next 6 — 8 months all my TSH results were normal but as with the majority of patients hyperthyroidism kicked in again taking my TSH level to being very "off the scale" low at 0. And so it was decided to go back on carbimazole and propranolol and the next 8 months saw various reducing titrations fail to normalise my TSH levels.

And so every few weeks I continued to shuffle between my local hospital for endocrine appointments and Moorfields Eye Hospital in London. In the summer of after a full 4 years of medication treatment and a full case review I was offered either a thyroidectomy or Radio Iodine Thyroid ablation RAI. Having an aversion to surgery and following advice and set protocols from Moorfields Eye Hospital I opted for a course of precautionary steroid prednisolone just in case the TED happened to go into overdrive following RAI and then in November proceeded to wander into the realms of what seemed like science fiction at my local and brand new dept of Nuclear Medicine.

Compared to surgery and its risks and a hospital stay the Radio Iodine treatment simply involves swallowing a standard size gelatine capsule. Ten minutes later and off home you go albeit to a regime of moderate confinement for a couple of weeks, great and a good excuse if you are feeling antisocial. I had a couple of follow up appointments with the endocrine department but by the autumn of was discharged after 5 years to the care of my GP.

Because of my mild TED it was recommended that thyroid blood tests are carried out every 4 months and this is still the case today and overall it did take some time and adjustments of levothyroxine to find the correct dose to keep me in the normal zone. This is when you need to take control and see how you feel as well as looking at the dosage. For me mcg of levothyroxine was too much and 75mcg to little so I have a regime of mcg Mon — Fri then 75mcg Sat — Sun.

A lot is said and written about when to take levothyroxine and how it reacts in the body. I have adopted the method of taking the pill during any of the night time hours by keeping it in a tiny plastic cup at the bedside a plastic screw bottle top is just as good thereby avoiding getting up and having to wait an hour before breakfast, tea or coffee etc.

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  • It works for me. One of the drawbacks I encountered on this long journey was a lack of continuity as over the 5 years and 20 hospital appointments I saw no less than 14 separate consultants, registrars and doctors so each time we had to start the consultation from scratch so its important to keep a record of your visits and I devised my own medication dosage table with its corresponding thyroid blood test results. It is worth noting that different GPs can have differing prescribing protocols.

    One GP would allow 3 months supply of levothyroxine another only 1 month but my latest will allow 2 months which is how it should be. Another cautionary tale is if at all possible when it comes to TED always get a referral to specialist eye hospital that knows how to manage TED.

    Graves disease is one of those mysterious conditions and in my case the best guess is that the antibodies that attacked the system may have been lying dormant for many years following Scarlet Fever that I contracted in the s. And with no conclusive diagnosis other than a field test anomaly was sent away clutching some glaucoma eye drops despite having normal eye pressures, to take as a precaution. I am very myopic with elliptical shaped optical discs and I must have proved to be somewhat of an unusual patient. But after taking travatan then its preservative free version Monopost my dry eye symptoms that have bothered me these last 8 years have been "cured immediately".

    I no longer tear and am able to face those cold blustery winds directly in the face. After checking this out with my TED consultant this has become a bit of a discovery and I continue to administer one single drop of Monopost last thing at night and that dripping dry eye has vanished. So yes I been through the mill and resurfaced and learned so much over the last decade. I still have my four monthly thyroid blood tests and attend outpatients at the eye hospital every few months for monitoring but to date and following a recent MRI of both eyes, thing's have now stabilised.

    Hypothyroidism is a forever condition and there are days when the energy levels dip and fatigue and tiredness take over and the usual cold hands and cold feet effect but it is a very manageable condition. The best and simplest analogy I was given to explain hypothyroidism is likening the thyroid gland to the carburettor fuel injector in a car engine.

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    Thyroxine is the fuel petrol that is needed to get you moving. Accelerate push when needed and brake pull when you need to slow. Being hypothytroid means you are unable to accelerate and brake naturally on demand as the levothyroxine dose circulates at pretty much a constant rate of speed so some days your energy levels dip tiredness and fatigue and some days you may have some energy in reserve and its up, up and away! Six stone is the amount of weight I had gained in a year and a half from the medication I was put on to treat my Graves' disease.

    Entering high school, this physical and hormonal change my body was going through had me feeling depressed. I was losing my hair, eating more, and feeling completely worthless. I would have anxiety attacks before going to the doctors; it became routine for my weight to be the topic of discussion rather than my thyroid health. Finally, the doctors decided my underactive thyroid was not reacting well to the medication I had been taking for months and therefore had radioactive iodine therapy treatment to remove my thyroid. I was put on a replacement synthetic hormone medication that I would have to take for the rest of my life.

    I was completely fed up with my health at this point. I decided to weigh myself after the ablation of my thyroid. I felt disgusted when I looked down; I weighed 16 and a half stone, an unacceptable weight for even a grown man of my height. I sat down on my couch thinking to myself that my obesity was holding me back from everything I wanted in life.

    I wanted to be confident when I went to school, I wanted boys to like me back, I wanted to try out cheerleading. I decided there and then that I had to take responsibility for this weight gain even though it was not my fault. It started small and simple. I began to eliminate the obvious 'bad foods' from my diet. I gave up fried foods and soda pop. I did not want to become a health freak, but I decided it would be a good idea to eat only the healthy options when I went out to restaurants also.

    I slowly started to realise that eating fruits, vegetables and healthy grains were actually appetising and became my preferred dishes. My family did not support my newest obsessions with Brussel sprouts and avocados, so I had to do a lot of grocery shopping for myself. I still enjoyed my bagels and cream cheese; I just started to enjoy more wholesome nutritious foods also. To my surprise, my new healthy habits started to fog my depression and self-worthlessness. In fact, I started to lose a few pounds. My thyroid doctor even smiled at my next visit when she noticed that my 'off the charts weight' was now on the chart.

    She told me she was so pleased with me and shared my weight loss with her colleagues. For the first time I felt proud to be weighed. I started to gain a little bit of confidence. I wanted to continue to lose weight, so I started to research the subject of human nutrition. I bought several books and committed a lot of free time to reading research studies about weight loss. It was easy to understand that a magical pill or shake was not going to rid me of the excess weight I was carrying. I started to value my body and health in new way. For the first time in my life I felt that my body was important and taking care of it through proper eating was mentally healing.

    I no longer craved macaroni and cheese and fried buffalo chicken sandwiches my previous favorite foods. I started experimenting with new ingredients and flavors; cooking became a new hobby of mine. I also began doing a lot of physical activity that I found enjoyable. I do not like to do vigorous activity so walking the neighborhood, yoga, and dancing to music videos became my preferred ways to work out. I steadily lost anywhere from pounds every month for roughly three years. My confidence began to escalate, and it became so clear to me that food was playing a new kind of role in my life.

    Not for comfort or boredom but rather as a tool for keeping my body alive and vibrant. I never went on a 'crash diet', used any kind of diet pills, or bought exercise programs or gym memberships. I simply lost weight in the most natural of ways; through feeding my body what it needed and being more active. Looking back now, I could not be happier with my decision to embrace my health. Losing weight for me was not a task, but rather a journey. A life changing journey that has affected me physically, mentally, and emotionally. It may have taken me three long years, but I am glad for that.

    I have so much appreciation for my life now. I am not that person on the couch crying. I view life differently; I am more confident, happy, and now 80 pounds lighter then I used to be. I combatted high blood pressure, depression, and obesity through corrective nutrition measures. I cured myself because, well who wouldn't want a quality life to live. I wanted to be confident, have boyfriends, and be a cheerleader Normally, the thyroid gland produces a hormone abbreviated as T3.

    This is converted in the body to T4, which is the active version, and which controls the rate of growth and development of the body. The Pituitary Gland detects the amounts of T3 and T4 in the body and also assesses the amount required. In PTHRS, the body resists, and effectively fails to recognise T3, and so the Pituitary gland responds by producing high quantities of TSH, causing the thyroid gland to work overtime, become large, but still not produce enough T3 since most of it is not recognised.

    The symptoms of this are the normal symptoms of thyroid deficiency, combined with an enlarged thyroid gland, and high levels of TSH and T3. In my case, the condition is partial, which means that if T3 levels are increased artificially by tablets to a high enough level, the body starts recognising it, growth, development and normal thyroid symptoms can be achieved, but TSH is still high, and the substitute thyroid dose is quite high now Mcg per day, reduced from a high of Mcg per day l-thyroxine.

    I am the youngest of three brothers, born in , and My eldest brother has the same condition, and this was considered sufficiently unusual to be reported in Lancet. My middle brother has no thyroid or other abnormality at all , and neither did either parent, except for my mother who encountered a late onset but 'normal' thyroid deficiency at about I underwent a partial thyroidectomy in June at the Radcliffe Infirmary, Oxford.

    Although I know that I demonstrated some of the normal symptoms of thyroid deficiency, the main symptoms that prompted the surgery were constriction of the airpipe, associated with a very irritating and persistent dry cough. The symptoms were most pronounced when I was under stress — at the time this was doubted by doctors, although I have seen references to this in recent issues of BTF news. Because the operation was nearly 40 years ago, I cannot remember too may details.

    However, I recall being content with the briefing and preparation before the operation, that it was successful see later , and with the aftercare. The first day or so after the operation was uncomfortable, but not, as I recall painful. I believe I lost quite a lot of blood, so was on drips for several days. The most uncomfortable part I remember was having the clips taken out, but they were effective in leaving a very unnoticeable scar some 4 — 5 inches.

    I had a stiff neck for several days, and some lack of volume if I tried to shout. I think the latter has been long-lasting, but as I don't shout much anyway, I am not sure. I have needed no further surgery or other treatment, other than adjustment to dosage. With a few minor exceptions, I have had no recurrence of the airpipe constriction or the cough. Having read several of the letters from thyroid patients in BTF News, I feel quite fortunate that my symptoms have been relatively minor before surgery, and virtually absent afterwards. In around , the then Registrar, Dr O'Rahilly finally diagnosed the specific diagnosis Partial Thyroid Hormone Resistance Syndrome , and tested me on a variety of dosages for several weeks each to find the optimum i.

    The conclusion was a dose of Mcg per day, which has continued with recentish reductions to mcg until today. It was pointed out that this was, in some respects, a 'least bad' dose, in that my TSH level is somewhat higher than normal. This can have its own adverse effects, in particular on blood pressure and on thinning of the bones potential osteoporosis , also possibly on diabetes. Whilst working, my life style exercise, diet was not ideal, so the raised blood pressure and contracting Type 2 Diabetes may be due in part or fully to that rather than to the raised TSH.

    However, I take Calcichew 2 tablets per day to build up the bones, and bone scans every two years show that the original thinning is now stabilising and possibly improving. I was born at the Radcliffe, and have attended it as both outpatient and inpatient all my life. I wouldn't wish my condition or any other on anybody, but if you've got to have it, I consider that the Radcliffe have treated me professionally, successfully and considerately all that time, and I have full confidence in them.

    For a number of years I had visited my GP complaining of feeling tired. Initially I thought it was probably just me as I have a very busy job working as a Training Officer which involves continual early starts and a significant amount of travelling. Added to that the actual training itself and family commitments was it any wonder I felt the way I did. My GP was always very attentive and I was never made to feel I was wasting his time. On several occasions he sent me for blood tests.

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    The results either showed I had sub-clinical hypothyroidism, or, after following this up a few months later, that my TSH levels had returned to normal. This happened over the course of several years which in many ways was quite frustrating. Should I have treatment at this stage or not? I was also experiencing very cold hands and constipation. My GP thought not but agreed he would monitor the situation and stated I should see him if I continued feeling unwell.

    The amazing thing was in I made the decision to try and lose some weight. Following a visit to a dietician and seeking advice, I started to eat more healthily and also increased my exercise levels. By I had lost 5 stone which was unbelievable considering I had never been able to shed any weight on previous occasions and was told at one stage that I had polycystic ovary syndrome which makes weight loss even more difficult. During this time I also had to have a hysterectomy, which slowed me down for a while, but I soon got back to enjoying exercise and discovered a love of walking and the outdoors.

    Having lost all that weight I was determined to keep it off and to this very day that has been the case give or take a few pounds. In my mum was diagnosed with two secondary brain tumours and her condition was terminal, within four months of diagnosis she sadly passed away. Harris, who was diagnosed at 23, has experienced it all over the past 13 years: She is now recovering from a recent stroke.

    But on the other extreme, Harris says there are days she feels like she can run a marathon. On my good days, my mind is clear and at peace, my movements are fluid. Avoid negativity at all costs, and love yourself. Dookie will never forget the day she got her official diagnosis of SLE.

    Instead of waiting for her illness to fill up her schedule, though, she stocks her good days full of other activities and listens to her body about when she needs to cut back. This month, Dookie had a busy calendar with stand-up performances, and she even signed up for an inflatable obstacle course 5K run with friends. Find your own new space in the world. At 17, Whitney noticed her first symptoms, sore muscles and a rash, which she thought was just a sunburn at first. But her mom, who also had an autoimmune disorder, became frantic when things got worse and took her see a rheumatologist, who diagnosed her with lupus.

    Fuong comes from a long line of women with autoimmune diseases. One of her tricks is adjusting the language she uses, both with herself and with her loved ones. But now, by always saying maybe, I give myself an easy out when needed. And I set realistic expectations with friends. Ingrid, too, described the heavy effects of fatigue and how it takes a toll on relationships with friends and family. Showing best matches Show all copies.

    What makes Biblio different? Sign In Register Help Cart 0. This copy of I Found No Peace: Ships with Tracking Number! May not contain Access Codes or Supplements. Buy with confidence, excellent customer service! I Found No Peace: Large, heavy book, orange cloth with gilt facsimile signature near fine at top front, gilt lettering and line design very fine on spine, map of Miller's world travels in red and white inside covers and adjacent end papers, stiff lightly browned pages: Mexico, Ireland, Germany, France, India and others.

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    DJ heavy paper beneath mylar, light brown background with images of passports in background, red passport illustrated on front. DJ has two micronicks and light creases at top front, tiny tear at spine top edge, light wear to spine bottom edge, tiny tear at bottom back spine indentation. Callaghan Books South Published: The Literary Guild, Inc..